Immune thrombocytopenia 

(ITP)

Immune thrombocytopenia + You

Advocating for ITP patients since 2002.

The first nationwide telemedicine

ITP consult service

Diagnosing ITP:

  • This is confusing because there is no diagnostic test to prove ITP

  • ITP means “anybody with low platelet count” who has no bone marrow dysfunction or spleen enlargement

  • ITP is different for each patient-probably several mechanisms

  • Platelet transfusion that “doesn’t work” is evidence of ITP

  • Many times, we must assume ITP and try ITP treatments

  • Bone marrow biopsy is usually not needed to diagnose ITP

Common issues with ITP care:

  • Most heme/onc physicians focus more on cancer than ITP

  • Most heme/onc physicians only follow a handful of ITP patients

  • Each ITP patient is different, so using an algorithm and a “single approach” does not work well for most patients

  • Acute ITP (e.g. newly diagnosed ITP) is challenging, and inpatient health care providers have variable experience and ability to treat ITP patients

  • There is a variable appreciation and understanding of the adverse effects of long-term steroid use

Treating Acute ITP:

  • You are admitted to the hospital if platelet count<20

  • We keep you in the hospital until there is a trend of improvement

  • This sometimes means several days or >1 week in the hospital

  • Steroid pulse is the main treatment-try to stop by 6 weeks

  • Rituxan is considered after 3-7 days of steroids

  • IVIG only required if severe bleeding or procedure

  • Romiplostim may be used in the first week

  • Do not do splenectomy until after everything else has not worked

Treating Chronic ITP:

  • Your doctor works with you to determine which treatments and platelet count targets are best for you

  • A target platelet count>50 is talked about, but platelet count>30 is safe for most people

  • Oral medications or weekly injections may be necessary

  • Splenectomy considered after a year of trying other options

  • We try to keep you off steroids

  • We try to keep you out of the hospital

What ITPDoctor.com offers:

  • We see you by televisit from the comfort of your home

  • We see you frequently, if needed, to help guide you

  • We assess your situation and help you understand it

  • We guide you through the challenging treatment decisions

  • We explain the ITP guidelines so you understand the options

  • We work with your other doctors to help them manage your case

Ready to tackle ITP?

It’s as easy as 1-2-3!

How it works:

1. Schedule a televisit

2. Email your records

3. Get expert advice

 

Immune thrombocytopenia (ITP) is a blood disorder that may lead to easy or excessive bruising and bleeding because your body’s platelet count is low.